What do you do when you’re really sick and can’t really do much else? Some crochet! .
.
Sorry for the silence folks, I’ve been in the wars on the health front and it’s been rougher than I’d like. At one point I was playing medical bingo with how many possibly issues I had racked up. Many appointments, a visit to A&E and phone calls later and some time off to rest, it feels like I’m finally getting to the bottom of this hole.
.
Of 7 potential things that could have gone wrong, 4 did 🤣 my energy levels are in the pits but I’m trying to slowly build things back up, slow and steady wins the race right? 🐢
.
I will, at some point, share what’s been happening, how I’ve been adapting etc. It’s been a bit of a mind (insert rude word here). Needless to say, I’m sort of thinking I should write a book on what not to do in a pandemic 😅
#crochet #crochetersofinstagram #crochetaddict #crochetblanket #crochetlover #mandala #yarnaddict #yarnspirations #chronicillness #chronicpain #chronicfatigue #ehlersdanlossyndrome #zebrawarrior #cancersurvivor #paraclimber #resilience #faceyourself #selfcare #selfcarematters #spooniewarrior #whatnottodo #keepongoing #takeiteasy #rabbithole #downtherabbithole
It’s May and that means it’s Ehlers-Danlos awareness month! This is a month where the whole community comes together to raise awareness of the condition but also some of the difficulties we face and some of the good things for those able to find them. .
My diagnosis came nearly 4 years ago but now that I’m more aware of the symptoms, I was actually manifesting as a child but links weren’t made. Even as a teen when joints started subluxating, it took a while to even have it acknowledged that I was hyper mobile and this wasn’t just me exaggerating or things in my head. Difficulties with my joints, chronic gut issues and interesting skin issues all pointed to more than just hyper mobile joints but that requires people to look beyond the simple symptoms. .
Medical professionals are taught to think horses, not zebras - ie: use common sense and assume the symptoms are a common condition.
.
The problem is EDS often manifests with lots of common issues and so, for us, we need to think of zebras and not horses. It’s why the zebra is how we represent ourselves. We are Zebra Warriors. .
We advocate for ourselves, we become our own doctors, nutritionists and investigators as we fight to get to the bottom of symptoms and we sometimes have to deal with people saying it’s in our heads because we look ok when we don’t feel ok. That’s the curse of invisible illnesses. .
@ehlersdanlosuk @ehlers.danlos #chronicillness #chronicpain #chronicfatigue #ehlersdanlossyndrome #ehlersdanlos #ehlersdanlosawareness #eds #spoonie #spoonielife #spooniewarrior #zebrawarrior #thinkzebra #notalldisabilitiesarevisible #invisibleillness #disabilityawareness #itsoktonotbeok #patientadvocate #advocate #publicspeaker #raisingawareness #breakingbarriers #bethechange #speakup thanks @lisabennettinsta 📸 #raisingawarenesstogether
